Today we heard of the tragic death of Disney star Cameron Boyce. He died in his sleep yesterday from a seizure.
While my son was in the hospital May and part of June, he got to watch a LOT of kid TV shows, including "Jessie" and Disney's "The Descendents" (1 and 2). We got to see Cameron in so many shows ... over and over and over.
So when we heard of this young man's death, I struggled for air. Death in his sleep. Seizure. Probably SUDEP.
As the mother of an epileptic, I hate seeing news like this.. of what I dread. I can only imagine what his family must be going through.
How will I tell my son? How will he take it?
I sat down with him and as gently as possible, explained about Cameron. That the news didn't report epilepsy or SUDEP but it probably was. That this is exactly why I don't want him sleeping with too many pillows. Why I still check on him during the night. Why I haven't slept well since 2011.
People need to know about epilepsy, and understand it is a killer.
Pass the word.
https://www.amazon.com/dp/B07PWGR8M8
Showing posts with label Epilepsy. Show all posts
Showing posts with label Epilepsy. Show all posts
Sunday, July 7, 2019
Saturday, March 23, 2019
Epilepsy - One Mother's Perspective
As the mother of an adult autistic man who has uncontrolled epilepsy, I spent a while writing this book to give easy-to-read information about seizure and epilepsy basics, plus some frequently-used terminology, symptoms and triggers, treatments, and possible surgeries.
It also gives logs and charts for you, as the epileptic, can keep track of important information (for your self AND your health care team) such as: important contacts, appointments, medications, discussions with doctors, blood work, occurrences of all sorts of seizure types, usage of a VNS swiper, and more.
Whether you have seizures or know someone or are taking of such a person, this book is indispensable. Please order your copy right away.
I am currently working on a companion Kindle book that goes more into our story of the seizures beginning and our journey to navigate the terror that goes along with it. That short Kindle book will be made into an MP3 file that will be available for download, by individuals AND libraries. The goal for these is mid to late April 2019.
The paperback linked above is available now to purchase for your store, and I am available for talks and autographing. Please contact me. Thank you.
It also gives logs and charts for you, as the epileptic, can keep track of important information (for your self AND your health care team) such as: important contacts, appointments, medications, discussions with doctors, blood work, occurrences of all sorts of seizure types, usage of a VNS swiper, and more.
Whether you have seizures or know someone or are taking of such a person, this book is indispensable. Please order your copy right away.
Paperback edition
Published Mar 22 2019
E-Book / Kindle edition
Published Mar 21 2019
The paperback linked above is available now to purchase for your store, and I am available for talks and autographing. Please contact me. Thank you.
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